Every year on April 17, people around the world observes World Hemophilia Day to increase awareness about hemophilia and various bleeding disorders. This day was first recognized in 1989 and was initiated by the World Federation of Hemophilia (WFH). The date, April 17, was selected to honor the birthday of Frank Schnabel, the founder of WFH. Since it began, this day has acted as a platform to bring together the global community facing bleeding disorders, advocate for improved care, and raise awareness.
Hemophilia is generally an inherited disorder characterized by insufficient clotting factors in the blood, which can lead to extended periods of bleeding. This may cause spontaneous bleeding incidents or significant bleeding after injuries and surgical procedures. The severity of hemophilia is determined by the quantity of clotting factors in the blood, where lower levels heighten the risk of severe health issues.
The theme for World Hemophilia Day 2025 is “Access for All: Women and Girls Bleed Too.” It confronts a common misconception that bleeding disorders are exclusive to men. Although hemophilia is predominantly diagnosed in males, women and girls can also experience severe symptoms, particularly with conditions like von Willebrand disease or as carriers of hemophilia. However, many of them are often overlooked. Their symptoms, such as heavy menstrual bleeding, are frequently dismissed as “normal,” resulting in underdiagnosis and prolonged periods without appropriate treatment.
What Can You Do?
Wear red – Demonstrate your support by dressing in red on April 17. It’s a straightforward action that can initiate important discussions.
Share stories on social media – Your voice is crucial. If you or someone you know is living with a bleeding disorder, share your experiences using hashtags such as #WHD2025 #WomenAndGirlsBleedToo #NBDFWHD and tag @NBDF.
Educate yourself and others – Awareness is vital. Understand how these conditions affect women and girls.
By emphasizing inclusivity and fair access to care, World Hemophilia Day 2025 seeks to guarantee that all individuals, regardless of gender, receive the diagnosis, and treatment they deserve. Through collaborative efforts, the global community can strive for a future where everyone impacted by bleeding disorders is supported and empowered.
Written By:
Rtr. Prabashi Kurugamage
(Senior Blog Team Member 2024-25)
Edited By:
Rtr. Chamodi Sathsarani
(Junior Blog Team Member 2024-25)
